Latest News About Andrew
December 3, 2005
The Daily Record of
Morris County, NJ ran had an article about Andrew printed in their
paper.
Read the article:
Roxbury baby with rare disease in fight for life
January 22, 2006
The PleaseFixAndrew.com website goes
live. As new progress is made for Andrew, we will post it here
for everyone to see.
January, 2006
Andrew is currently
not needing oxygen during the day!! This is a very big step for him,
and we are so excited with his progress.
Also, Andrew is undergoing Vital Stim, which is a
therapy process to regain his swallowing instinct. We will
keep you updated on his progress.
Spring 2006
Andrew is still
working with PT and OT to strengthen his muscles. He has a vigorous
weekly routine that he follows.
Andrew is still on a ventilator, but the setting
have been lowered and he gets taken off the vent for 10 minutes a
day.
Vital Stim was not a huge success, but did help
Andrew somewhat. He is still being fed though a feeding tube,
but he is trying to work on his swallowing.
June 2006
Andrew recently spent 3 weeks at CHOP in Philadelphia for
treatment of Adenovirus, Pancreatitis and a Metabolic
Crisis. During this time we learned that Andrew now suffers
from three kidney diseases; Fanconi's Syndrome, Focal
Segmental Glomerulosclerosis and Renal Tubular Acidosis. An
MRI of Andrew's brain also revealed that he now suffers from
some brain abnormalities.
The good news is that Andrew is finally feeling better and
has some how managed to bounce back once again surprising
everyone. He has been smiling, playing and even back to
physical therapy. He is looking forward to a week at the
beach this summer !!!!
Andrew is doing very well with his physical therapy. He can now
sit all by himself, twist around and play independently. Andrew
is now working on learning sign language, enjoys looking at
books, finger painting and of course TV.
In December Andrew turned 2, and celebrated with all his friends
and family with a Circus theme birthday party. Cotton
candy and Lulu the clown/magician were his favorites !!!!
Andrew has been medically stable for several months now, and he
has even begun being disconnected from the ventilator for a few
hours a day, and will hopefully be able to build up his
tolerance for several more hours. He likes to be able to move
around freely.
Summer 2007
Andrew had a very busy summer with two vacations !!! The beach
was much more enjoyable this year because Andrew is spending
more time off the ventilator so we were able to sit by the edge
of the water and he would clap his hands each time the water ran
up over his feet and legs. Andrew also spent many weekends in
Aunt Dana and Uncle Paul's pool. This year we had much more
success with the floats and Andrew was able to float around the
pool by himself.
The newest accomplishment is the "walker", Andrew is the master
of walking in reverse !!!! He also does what we call the side
step but still practicing walking forward. We are so proud that
reverse is simply good enough for us.
In December Andrew will be going to a private nursery school,
mom is already a little anxious over it but we know that he is
going to love being around other children and will learn to be a
little more independent.
Being on the ventilator is NOT slowing us down at all, Andrew is
on the go all the time. Shopping, going out to dinner, birthday
parties, playdates, and now school. Things medically have been
stable for close to two years and Andrew has made many new
milestones.
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